The Hits Just Keep Coming: Chemo Begins and Kohen Breaks His Leg

Day Twenty-Five: Monday, December 09, 2019

Chemotherapy was supposed to begin today, but it was postponed by one day due to the flu running through our family.

Day Twenty-Six: Tuesday, December 10, 2019

Saying goodbye to your spouse and youngest child as they leave for a week of chemo treatment, stinks. It’s a tough goodbye, to say the least. The first night alone was terribly depressing. Oh, how I hate when darkness falls.

Day Twenty-Seven: Wednesday, December 11, 2019

Today was Kohen’s second day of chemotherapy treatment. He was still taking it well and was in good spirits.

However, today was also the day he fractured his leg in the location of his femur that was already compromised by the tumor (and further compromised by the biopsy).

Kohen will now be in the hospital longer than initially expected. It seems like we just can’t catch a break.

(During his extended stay, a cast was formed for Kohen’s leg in order to manufacture a brace.)

Day Thirty: Saturday, December 14, 2019

Today is the first time in fifteen years of marriage that Courtney and I weren’t together on her birthday. In fact, this is the first time any of her five oldest kids did not get to spend her birthday with her.

But she was not alone, she had Kohen by her side. It was still depressing that the rest of her family didn’t get to spend her birthday with her, but they all understand why she couldn’t be with the rest of her family today; she has a higher calling, a greater purpose.

She was there with Kohen to support and care for him as he endured yet another day in this misery. Through all of this a mother’s love is on display, not just in words, but in practice, in action, and in sacrifice.

Neither Kohen nor any of his siblings will ever have to wonder if their mommy loved them. Instead they’ll only have to ponder how vast and how deep her love for them was.

What Exactly Does It Mean to be All Cried Out?

It is better to go to a house of mourning than to go to a house of feasting, because that is the end of every man . . .

Ecclesiastes 7:2

Growing up in the 80s, I was a big fan of R&B, and one of the many great songs that came out of that era of music was entitled All Cried Out by Lisa Lisa and the Cult Jam, also of Lost in Emotion, Can You Feel the Beat, and Head to Toe fame. (And no, that wasn’t a typo, the band’s name actually contains two Lisas.)

All Cried Out is a gut wrenching song, mostly because of the vocals. The hauntingly sad vocals are so effective in evoking the depth of the singer’s grief, that she could be lamenting the loss of her car keys and it would still be an equally sad song. But thankfully, the writers decided not to make the object of their song about lost keys or even spilled milk, but of a love lost.

When it released in 1986, All Cried Out reached number eight on the U.S. Billboard charts and number three on the R&B singles chart (and a remake of the song was produced in 1997 by the band Allure).

For those like me who enjoyed R&B back in the 80s (before it jumped off a cliff in the 90s and beyond), this is one of those songs you instantly remember when it comes on the radio, especially if you were experiencing pain or heartbreak at the time the song originally came out.

And for those who have a natural affinity for songs about heartbreak and loss, how could you not be drawn to this song’s melancholy melody and the despairing vocals, especially when combined with such grief-stricken lyrics like these:

All alone on a Sunday morning
Outside I see the rain is falling
Inside I’m slowly dying
But the rain will hide my crying, crying, crying

And later:

Don’t you know the heart will cause an inferno
Romance up in flames, why should I take the blame
You were the one who left me neglected (I’m so sorry)
Apology not accepted, add me to the broken hearts you collected

Just as I am irresistibly drawn to the many Lukas Graham songs that make reference to his father’s untimely death and how it affected him as a young man (e.g. You’re Not There, Happy Home, Here, Don’t You Worry ‘Bout Me, and 7 Years), I also gravitate toward melancholy books and movies. It’s why even my own books don’t necessarily have the happiest of endings. After all, in real life the lost dog doesn’t always return home, and the glass slipper doesn’t always fit the princess.

Even though I’ve always found All Cried Out to be an incredibly sad song (but in a beautiful way . . . if that makes any sense), I have never, in all my life, experienced the phenomenon that comprises the title of the song, namely, being all cried out.

I can now say, however, that after two straight weeks in the valley of unparalleled grief that began the day we found out about Kohen’s cancer, I am no longer a stranger to this phenomenon. I now know what it’s like to be all cried out.

But what exactly is it? What does it really mean to be all cried out?

It’s when you’ve cried so much—and so frequently—that you’ve simply reached a point where even though the waves of emotion continue coming to envelope you, you’ve lost the very ability to cry. You feel yourself crying–and your eyes swell with tears–yet the tears remain where they originate, never breaking forth. Biologically speaking, you’re simply no longer able to muster the necessary amount of moisture to cry. It’s crying, but without the ability to produce the tears.

I suppose that at this stage of Kohen’s cancer, it’s a good time to be all cried out because now is the time to begin the nearly year-long fight to save his life. We’re going to lose his leg, there’s no way around that, but we’re determined to not lose his life.

Perhaps being all cried out aids in my determination to do battle by not allowing me the time (or luxury) to wallow in my grief any more. Whether being all cried out is a normal phenomenon in these kinds of situations or a personal blessing in disguise, I do not know. But what I do know is being all cried out is a real thing, and it took me nearly fifty years to finally experience it. I only wish I hadn’t.

The Two-Week Anniversary Since Learning Our Child Has Cancer

“There is an appointed time for everything. And there is a time for every event under heaven.” (Ecclesiastes 3:1)

Day Fifteen: Friday, November 29, 2019

Today marks exactly two weeks since our world came crashing down. It’s now time that I switch my mindset and prepare to battle this cancer with my son.

There is a season for everything. In this trial, the season to mourn has passed and the season to fight has begun. It doesn’t mean that I’ll always be fighting with dry eyes, it just means that it’s time for battle in spite of my grief.

Day Sixteen: Saturday, November 30, 2019

Well, the epic battle I anticipated commencing, is now postponed due to the flu spreading through our house. Fever, coughing, and vomiting have taken up residency in our home. As if the cancer diagnosis (and the fishing hook injury) wasn’t enough for us to endure, three of our six kids are now sick today, one of whom is Kohen.

Day Seventeen: Sunday, December 01, 2019

The texts and phone calls keep coming in. And although I am grateful for the concern of family and friends, I just don’t want to talk to anyone about Kohen right now. I am mentally exhausted. I want to talk about anything but this cancer. Fishing, football, sweet tea . . . anything but Kohen and his situation.

I long for company for my wife and I to visit with. Of course, with the flu running through our house, I wouldn’t want anyone to visit us and risk getting sick.

Today we set up a Christmas tree that Kohen’s aunt and uncle chopped down for us in the snowy Sierras. I spectated as the kids decorated the tree, then we watched an old I Love Lucy Christmas episode. It’s all about the little moments now, and there’s no place I’d rather be than in that moment with my family.

But I’m also dreading January. January has always been the most depressing month of the year and I suspect we will be incredibly lonely as the holidays move behind us. It will also be the time that the chemo treatments come fast and furious, so Kohen and Courtney will be at the hospital more during that time.

Day Eighteen: Monday, December 02, 2019

Doctors in Utah are now saying that after they ran more tests on the biopsy from Kohen’s leg, they’re not entirely sure it’s osteosarcoma. They say it has some of the characteristics of osteosarcoma, but that it’s missing other expected characteristics.

Ugh. This is so frustrating. The unknown (every step of the way) has become so daunting and discouraging.

(Spoiler: It would later be confirmed Osteosarcoma by a doctor out of Miami, Florida.)

Day Nineteen: Tuesday, December 03, 2019

We are rapidly approaching three weeks into this trial and I’m still thinking I’m going to wake up from this nightmare, yet each day I wake, I realize this is the new norm for us. I hate it and wouldn’t wish it on my worst enemy.

I am thankful today for the little things, like the fact that we are having a beautiful snow day with a fresh layer of snow blanketing the landscape.

Day Twenty-One: Wednesday, December 04, 2019

Today, while I was at work, it was yet another day for my wife filled with phone calls to doctors and insurance companies. She’s also been frantically working to prepare for Kohen’s treatment, including making a special area in our home for Kohen where his exposure to germs will be minimized.

She is truly amazing how she handles everything she does while bearing the weight of this situation. Moms are amazing . . . but stay at home moms are uber amazing.