Get Acquainted With Kohen

Kohen in Tennessee (circa April 2019)

Today marks eight months since our world came crashing down and our hearts were broken like nothing else we’ve ever experienced. Eight long months of a grueling journey to save Kohen’s life.

But who is Kohen? 

Over the past eight months it’s been easy to get lost in the chaos and grief of Kohen’s cancer, chemotherapy, rotationplasty, and rehabilitation–so much so, in fact–that it can easily overshadow who Kohen is, and we could completely miss the preciousness of this amazing little boy.

That is a shame, because few of you really know him aside from blog updates and pictures of him in a hospital bed. But he’s more than cancer, more than hospital visits, more than an object of our pity and empathy. He is our son, Kohen Gabriel Pattison. A dynamic, wise-beyond-his-years young man who is adored by his family and makes his mama and papa so exceptionally proud.

So who is this young man? This boy that has captivated our hearts? This blessing that has garnered the prayers, tears, and donations of strangers all over the country? Oblige me a moment to better acquaint you with our pride and joy.

He loves to count and he adores tigers. He’s surprisingly good at adult-level board games and he’s extremely witty for his age. He also enjoys fishing (which he’s a natural at) and being on the boat. I noticed early on he seemed most comfortable on the water.

Below I’ve included some pictures over the years where you can see why we love this little man, and why we are so thankful to each and every one of you who have given of your time, money, and resources, who have prayed and provided, and who have encouraged us through this dark time.

One of many fish this boy has held.
Crazy wigs and funny hats make him smile.
Tender moments are abundant in our family.
And goofy moments, too.
A handsome young man, no doubt.
Another hat, another goofy face.
Brotherly love.
My, what a big nose you have, Inspector Clouseau.
Holding a baby goat.
Trying to ride a baby goat.
Surprise!
Enjoying the fair and rodeo.
When you have unsupervised time with the markers.

More updates will follow as we approach completion of Kohen’s chemotherapy. Thank you all again, a million times over, for all the prayers, support, and encouragement.

Recovery Update

Currently it’s raining here in Salt Lake City, but inside the hospital the sun is shining because even though we are only three days removed from Kohen’s rotationplasty surgery, he is progressing remarkably well—even better than we anticipated at this stage.

Below is an x-ray image of the screws that have been permanently inserted into Kohen’s little body (getting through the TSA on flights will be an even more fun experience now). These screws are holding what used to be Kohen’s lower femur, securely into his pelvis.

Today he had his first physical therapy session and it went very well. He even got to toss a ball with his daddy from his bed.

We are expecting to have his epidural removed tomorrow and begin transitioning him to oral pain management.

In spite of everything he’s gone though the past three and a half months—and what he’s currently enduring—Kohen remains in good spirits.

We still don’t have a solid date yet of when he will be released, but we are getting closer. And with this little boy’s toughness, tenacity, and courage, we may end up being ahead of schedule for his recovery.

Finally, here is a short video of Kohen enjoying some blueberries . . . just because.

Numb

I don’t know when it happened. Sometime between the one-month and two-month mark of finding out Kohen has cancer, I went numb. Emotionally and spiritually numb.

Perhaps it’s from juggling responsibilities at work and caring for our five children at home while Courtney is at the hospital with Kohen . . . perhaps it’s from being all cried out . . . perhaps it’s both.

Or maybe, it’s just that I’ve finally compartmentalized what is happening to Kohen, like how I’ve done with my job for the past twenty years. It’s how I can be witness to countless horrible sights, smells, sounds, and experiences—bearing witness to the evil that men and women do to one another—and yet still do my job (and maintain my sanity).

The mechanism I’ve used in my job to cope with the horrors of life in the real world (where people commit terrible and violent crimes against each other) isn’t something I’ve ever consciously tried to put into effect, it just happens. And it seems to have worked fairly well the past two decades. But I do remember when there was a crack in the wall; the one time when this coping mechanism momentarily failed and emotions exploited the opportunity.

It came after three juvenile deaths within an eight month period between 2008 and 2009.

In November of 2008, I dealt with a fourteen-year-old who used his parents’ shotgun to kill himself in their bedroom while they were out for the evening.

In March of 2009 I worked in vain to save the life of a one-year-old boy in his driveway (the same age as my oldest son at the time) after he was backed over by a vehicle. All the CPR and other lifesaving efforts in the world made no difference, he succumbed to his injuries and there was nothing else we could do for him.

Then in July of 2009, a six-year-old boy went missing at the lake over the 4th of July weekend. It was presumed he drowned but divers could not find his body.

That following Monday evening, after the lake had been cleared out of beach goers and campers who returned to their normal work week, the boy’s body surfaced. I responded to the scene after he was pulled from the water and remained beside his body until he was transported for autopsy later that night. Watching the sun go down, and a breathtaking full moon rise over the mountains on the opposite side of the lake while I stood watch over the deceased child, was quite a surreal moment.

It wasn’t long after that I was riding in a car to Oregon when—for the briefest of moments—those emotions got the better of me. That spate of three juvenile deaths, for some inexplicable reason, momentarily compromised my coping mechanism and I wept.

I’ve been involved in countless other death investigations before and since then, involving babies, children, and adults (to include suicides, car accidents, fire, gunshots, stabbings, etc.) but I have never again had that breech in my usually impenetrable wall.

But what worries me is I believe I’m employing this same subconscious coping mechanism with my son. It’s been a long time since I’ve felt emotions about Kohen’s situation. For over a month after learning of his cancer, I cried every day. Now . . . nothing.

I’m drained. I feel distant and disconnected (even from the rest of my family), like I’m just going through the motions.

And I’m tired. Tired of talking about Kohen and his cancer; tired of giving updates about his cancer; tired of even writing about it. I’ve grown completely numb—I can’t even remember the last time I’ve cried over Kohen. And that scares me.

Just like people say about parenting not coming with an instruction manual, there’s also no instruction manual for how to deal with life when your child gets cancer.

Who knows? Maybe this is just a touch of unconscionable narcissism on my part. Maybe it’s just an excuse for being a deficient husband and neglectful father. Or maybe I’m just being a self-indulgent jerk, wallowing in my inner conflicts and wrestling with my own emotions when my focus should be on my son. I don’t really know, but hopefully one day I will have the answer and get it together.