Today marks six months since we received confirmation that Kohen had cancer (November 26th). It has been the longest six months of our lives and we still have at least two more months of chemotherapy remaining.
I wanted to start off this update by extending my thanks to a few more of those who’ve helped us on this journey: the Galvin and Tripp families for creating a GoFundMe for Kohen, and the Paterson and Musser families for also creating a GoFundMe for Kohen. Both of these conduits for donations have been invaluable to us through this ordeal.
Last month Kohen received his temporary prosthetic leg, however, he’s only permitted to use it with the aid of crutches or his walker until the surgeon gives us the green light for Kohen to go full weight-bearing on it. He’s been walking well with it, adapting to it like a pro.
And we are all discovering the little issues that arise from the use of a prosthetic, like needing a special sock that makes a prosthetic more comfortable to wear, identifying areas on Kohen’s leg where the prosthetic is rubbing against his skin, and even misplacing the prosthetic. It’s one thing to misplace your phone, wallet, or keys, but misplacing an entire leg is a whole new experience for us. “Has anyone seen Kohen’s leg?”
This month Kohen got casted for his permanent prosthetic leg. He should be getting that one in the near future and he will hopefully be able to put full weight on it soon. We are all very excited.
On May 15th we were woken by our second earthquake in the past two months. This earthquake struck a few minutes after 4 AM. The kids missed it because—as kids always do—they slept through it.
Last week we took the kids to the lake. Kohen got to play in the sand and ride in a pedal boat (he even got to pedal).
I noticed when Kohen was younger, he had an affinity for being on the water (like his daddy). He didn’t care what he was doing, just as long as he was on a boat. Since then, his love for being on the water, and for fishing, has not waned (and he’s a great little angler).
This past weekend we had the pleasure of taking all the kids kayaking (it helps when you only live five minutes from the lake). If you like fishing but have never tried kayak fishing, you’re missing out. You simply must try it—you’ll be hooked (pun intended).
When our day was done, Kohen caught the most fish with 10. The rest of us caught a combined 14.
Even the fish can’t resist this kid. 🥰
These moments at the lake—getting Kohen on the water he loves—are not only precious, they help lift the spirits of a kid who’s known nothing but pain, doctors, needles, surgery, rehabilitation, and chemotherapy for the last six months.
Of course, we have to take extra precautions on the lake during this time (like keeping as much sun off him as possible), but it is all worth it to see the smile on his face and the joy in his heart.